Lucy's Change Bandit Page!
Thank you for taking the time to visit my personal fundraising page to benefit Akron Children’s Hospital. ACH isn't just important to me and my family, it's important to hundreds of families each and every day!
Akron Children's Hospital has given my family faith, direction, and compassion in times of confusion and chaos. They have answered countless calls from my frantic mom each time I've been sick. They have messaged back when we got confused on medicine and procedure. They have walked my parents down the same path over and over again just to make sure they left the hospital confidently.
This year, I have chosen to be a change bandit for Akron Children's Hospital because they have helped me stay healthy! When I was born my newborn screening test came back "questionable" for Cystic Fibrosis. Cystic Fibrosis is a genetic disease that causes lung infections and limits the ability to breathe. There is a lot of mucus that clogs the airway. Cystic Fibrosis also affects the pancreas and digestive system. My parents took me to a lot of appointments at Akron Children's Hospital to get answers. I have had a lot of sweat tests and blood work done but my tests always come back in the gray area...meaning I have never tested positive OR negative for Cystic Fibrosis. The doctors treat me like I have it but I am not symptomatic...it's super confusing! I have a rare set of mutations and there isn't a lot of information about them so doctors can't tell me what will happen in the future. They put me in a database so hopefully someday they will be able to treat kids like me. We have learned to take one day at a time but we are thankful for the doctors and all of the staff for always being incredible and knowledgeable. We always feel like we are at home when we are there. Sometimes our appointments are really long but everyone is super patient with me when I get tired of being there. Everyone is great, from the nurses and doctors to the volunteers (even the Doggie Brigade!).
Please help me give back to a place that has given so much to others!
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